MPNEsupport Org 802492-1069, Sweden

Melanoma Patient Network Europe

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Tell us about your Melanoma

clinical trial experience

If you are a Melanoma patient or carer and you live in the European Union, we want to hear from you!

GetReal is a project that aims to develop ideas for new, alternative trial designs that better incorporate patient perspectives and real-world data (how a treatment works in real life, rather than in traditional clinical trials) into drug development. To do this, we need understand the experience of patients and carers with traditional clinical trials and ask for ideas about what could make trials better in the future.

Find out more and take part in our anonymous survey​

Thank you for your efforts- the survey is now closed.


Separate invitations for PRE-MPNE 2015 will be sent out with the main conference registration

the

program


Last update 16th April 2015, BR

Being part of the solution.

MPNE 2015


Annual conference


24th- 26th April 2015​


HOTEL MARIVAUX BRUSSELS
Boulevard Adolphe Max 98
1000 Brussels - Belgium


​

Pre- MPNE 2015

Thursday- 23rd April


afternoon
arrival MPNE core group- advocates involved in 

19.00

Dinner MPNE core


Friday- 24th April


8.30- 12.30
MPNE core meeting- for advocates involved in MPNE projects

  • Planning MPNE actions for 2015/ 2016, outcome to be presented on Sunday

12.30- 13.30
Lunch for MPNE core




Main conference
'THE RISK OF NOT TAKING RISKS IN MELANOMA'
 

Friday- 24th April


morning- mid-day
arrival of conference participants

Workshops 


13.30- 15.15
Workshop I

Dermoscopy- Part I What does a good skin exam look like?
Dermoscopy workshop for Melanoma Patient Advocates.
Zrinjka Patar. Ana-Maria Forsea, Monika Gniadecka, Selma Ataly

Workshop II
Therapy options in Stage IV Melanoma.

Pascal Wolter, Belgium.

Workshop III
Psychosocial support in Melanoma.

Stefania Bassino, Italy


GetReal- Focus session

for GetReal working group




15.15- 15.45
Coffee

 
15.45- 17.30
Workshop IV 

Dermoscopy- Part II with practical exercises

Workshop V
Therapy options for Stage III Melanoma.

Dirk Schadendorf, Germany.


EMA Focus group with Stage IV patients and carers
How do Melanoma patients assess risks and benefits of novel therapies?

 

18.00- 19.00
Mix & Match- get to meet old friends and new faces!
Gilliosa Spurrier, Mélanome France

 
19.30
Welcome Dinner- Marivaux Hotel

 


Saturday- 25th April
MPNE advisory board
‘The risk of not taking risks in Melanoma’


from 8.15
Coffee


8. 45- 9.00
Welcome

9-00- 10.30

Session 1- Risk

1.1 How much evidence and how much risk? Introduction to the conference

Bettina Ryll, MPNE

1.2 The risk in Melanoma Stage IV
Lori Murdoch, Stage IV Melanoma patient, UK


1.3 New hopes and new risks- the oncologist’s perspective on innovative medicines in Melanoma.
Bart Neyns, UZ Brussels, Belgium

1.4 Who should decide which risk to take?
Pan Pantziarka, The George Pantziarka TP53 Trust, UK

10.30- 11.00
Coffee
 
11.00- 12.30
Session 2- No risk, no innovation.

2.1 Innovative medicines and risk.

Michel Goldman, Université Libre de Bruxelles, previously: IMI director, Belgium

2.2 Risk / benefit assessment- the regulatory perspective. 

​Jorge Camarero, Spanish Agency of Medicines and Medical Devices, Spain

2.3 Innovation and risk- the industry perspective.
Brendan Barnes, EFPIA, Belgium

2.4 BIG data and innovation.
Nathalie Kayadjanian, Science Europe, Belgium
                      
12.30- 14.00
Lunch buffet


14.00- 15.30
Session 3- Measuring and mitigating risks.

3.1 The earlier, the better- learning in Early Access Programs

Edna Venneker, mytomorrows, Netherlands

3.2 Concerns about risk when procedures accelerate- parallel scientific advice in Australia 
Andrew Bruce, Amgen, previously: Medicines Australia, Switzerland


3.3 Risk- is it a matter of time?

Geert Bakker, Inspire2live, Netherlands


3.4 Incorporating patient risk/benefit assessment into regulatory decisions
Francesco Pignatti, EMA, UK


15.30- 16.15
Coffee break


16.15- 16.45

Session 4- GetReal
Sarah Garner, CASMI, UK 

The GetReal initiative
Results of the survey and the focus group

16.45- 17.45
Podium discussion- GetReal!

Real-world data in clinical trials
​

18.30
Poster session and reception

19.30
Conference Dinner
Dinner speech: Bob Philllips

 


Sunday- 26th April 
ADvocacy DAy


Sunday will focus on MPNE advocacy activities-


  • MPNE 2014 in review
  • Presentation of  Friday’s MPNE core meeting results: actions planned for 2015/ 2016
  • short reports from Friday’s workshops


8.30- 10.30


Welcome back and MPNE in 2014 15'

Bettina Ryll, MPNE 


Summary of the Friday workshops 15'

Gilly Spurrier, Melanome France, France/ MPNE


Focus on Romania- one year later 10'

Ana- Maria Forsea, Romanian Skin Cancer Foundation, Romania/ MPNE


Networks driving research- The Melanoma susceptibility project 15'
Antonella Romanini, ACM, Italy/ MPNE


The EUPATI- experience 10'

Violeta Astratinei, Melanom Romania, Netherlands/ Romania/ MPNE


Overcoming cancer drugs shortages - the role of volunteer networks and the media 15'
Vlad Voiculescu, The Missing Cancer Drugs Initiative, Austria


10.30- 11.00
Coffee break


11.00- 12.45
MPNE strategic planning 


Introduction- 5'



PLENARY- MPNE STRATEGY


How to find THAT clinical trial 10'

Bettina Ryll, MPNE


How to make the MPNE network work- our communication strategy. 10'
Lori Murdoch, Melanoma Network UK, UK


Knowledge is power- our education strategy. 10'

Gilly Spurrier, Melanome France, France

​


12.45- 13.00

Summary of the meeting and closure

Bettina Ryll, MPNE


13.00- 14.00
Buffet lunch and departure

 


​​We are looking forward to a productive and exciting MPNE 2015!